Treatment Costs

Although a charitable organization may still be in the works, the process will take some time and the family has an immediate need. The Robaut’s are currently planning to go overseas for gene therapy treatment for Nathan and Dillon. Gene therapy is not yet offered in the United States and seems to offer the most hope at the current time. Initial costs for gene therapy treatment are estimated at $50,000 per child. It is anticipated that each child may require multiple treatments over the course of many months. We believe the first treatment may start as early as 12-10-08 and the family will live overseas for a period of 5-6 weeks.