Category Archives: News

As you can see, we have redesigned the website and plan to update it much more frequently. A lot of exciting and positive events are happening in the search for a cure, but first an update on the boys. Nathan … Continue reading →

We apologize for not updating this website as often as we would like and appreciate everyone’s patience as we know you want to know how they are doing. Nathan continues to struggle with his body. He is able to get … Continue reading →

We have been back from Korea for almost a month now. Nathan seemed to do well while we were there, but since we have returned the regression has continued and he now has a really hard time moving. He cannot … Continue reading →

We would like to thank everyone for making it possible for us to be here in Korea. Nathan has started treatment and is getting stem cells harvested from Lisa 2-3 times a week, and he does appears to be doing … Continue reading →

With the help of the Sparrow Foundation, all donations made by check are now TAX DEDUCTIBLE! Any donations that have already been made by check will be included on a retroactive basis. Tax deductible donations can be made by check … Continue reading →

The family is scheduled to leave on Tuesday 12/16 and will stay overseas at least 4 weeks. The results of the fundraising has been tremendous but we are still a long way from our goal, so WE STILL NEED YOUR … Continue reading →

Although a charitable organization may still be in the works, the process will take some time and the family has an immediate need. The Robaut’s are currently planning to go overseas for gene therapy treatment for Nathan and Dillon. Gene … Continue reading →

Lisa and Sebastian Robaut’s 3 year old son, Nathan, was diagnosed with juvenile Tay-Sachs two weeks ago. Tay-Sachs is an extremely rare and fatal genetic disease. Due to the genetic nature of the disease, Lisa and Sebastian’s 4-month old baby, … Continue reading →